We arrived home yesterday afternoon. What a relief! Ella is doing well although two worrisome effects of the last bout of seizures are these twitches and jerks that she has from time to time. Dr. Duffy said these are seizures but they would be impossible to control. I’m hoping they will dissappear over time as she gets used to the higher dose of pheno.
The other issue is the weakness in the left side of her body. When sleeping and laying down on something flat, she always twists to one side. This is apparently a result of the weakness. Hopefully, this too will go away in time. Other than that it is great to have her back with us…she’s cooing and asserting her personality at every opportunity as before.